When Tracy Ryan and I finally connected she was between trips, having just returned to Los Angeles from the Women Grow Leadership Summit in Denver and heading off to Florida for her 3 year old daughter Sophie's Make-A-Wish trip. I felt awkward yet honored to be squeezed between these two significant events. However, she didn't make me feel like an inconvenience. Tracy was warm and generous, and I … [Read more...] about Strength In Vulnerability: Healing Cancer With Tracy Ryan And Cannakids
Why Quality Of Life Matters
It's been a hauntingly devastating couple of weeks for our community who has lost a number of children to complications related to epilepsy. I have no words, only prayers for comfort, wisdom and more than hope. To learn more about Sudden Unexpected Death in Epilepsy (SUDEP), visit the Danny Did Foundation here. … [Read more...] about Why Quality Of Life Matters
Weeding Through The Research
Studies on pediatric Cannabis are rolling in and I want to put a handful on your radar and show you where you can find the rest. I'll try to spare you my analysis because I want you to come to your own conclusions. I don't believe in one size fits all. Some of us in our community may share the same diagnosis, but we don't share the same circumstances. You live in a different state, have different … [Read more...] about Weeding Through The Research
I was suppose to be there to pick him up at 2 o'clock. Except the entire day was setting me up. A $13.47 errand took me to 3 different shops across town. When I got the call from the school at 10 past, I was certain it was just to reassure my son that I was on my way. Instead, it was that call. The worst call. "An 8 1/2 minute seizure on the playground at recess. The ambulance is on their way. He … [Read more...] about Status Update
“Happy” Epilepsy Awareness Month
November is Epilepsy Awareness Month and I apologize for not posting earlier. I really tried but found myself bored while reviewing the usual. All stuff we need to share, I'm sure, but I just wasn't feeling any of it. Struggling with my motivation and finding a topic to create awareness around, I sat down to write and decided to simply start where I'm at. Checking in I noticed I'm really, … [Read more...] about “Happy” Epilepsy Awareness Month
CBD Calculator App
I love the moms in our group because we are the women who take matters into our own hands. We all get asked a lot of the same questions over and over again. How to dose is a big one.* Most of us start with the spreadsheet calculator shared by the Realm of Caring. Two years ago I used a scratch piece of paper shoved in a binder to do the math. My friend Olivia? She taught herself how to code and … [Read more...] about CBD Calculator App
Is Medical Marijuana Legal For Children In California?
If you are a parent treating your child with cannabis in Southern California, then you are probably a patient of Dr. Bonni Goldstein's. Or, you are on her months-long wait list. We all agree, our families are very lucky to have an expert in pediatric cannabis in our own backyard. She has been recommending cannabis to children in our community and supporting our parents for years now. And since my … [Read more...] about Is Medical Marijuana Legal For Children In California?
I love a good juxtaposition. I got one for you: This is my friend Ray. He and the rest of the Mirzabegian brothers are responsible for bringing The Realm of Caring and Charlotte's Web, the high CBD oil that is saving my son's life, to California. He also makes THC concentrates for children. I haven't needed to add THC to my son's treatment, but I know a lot of families who have and it's … [Read more...] about Meet Ray
Looking for it
"You're looking for certainty," my son's neurologist reflected. I lowered by chin and raised my eyebrows with pursed lips. I've been Buddhish for over 20 years and work in the field of death and dying. I'm pretty sure I don't believe in certainty. And certainly not when it comes to epilepsy treatment. I saw this post on brilliant Elizabeth's blog a couple days after this appointment and made … [Read more...] about Looking for it
When Senator Gillebrand mentioned in The Senate Caucus on International Narcotics Control hearing about the current state of cannabis research being primarily in the hands of one pharmaceutical company, she was talking about GW Pharmaceutical. They've been working on marijuana based medicines in top "secret locations" at least since the mid nineties. Their highly anticipated CBD pharmaceutical … [Read more...] about Antecdotal Epidiolex