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Pediatric Cannabis Support

Always Follow Hope

HOPE

And She Was

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"¿No estoy yo aquí que soy tu madre?" I hadn't expected the drumming. I felt the pounding in my chest before I smelled the copal. Smoke billowed up from the plaza filled with tens of thousands of pilgrims. Dancing, crying, nursing mothers everywhere . . . images of la Virgen were everywhere . . . large statues, faded prints and homemade altars tied on backs, strapped to wheelchairs and s … [Read more...] about And She Was

“Happy” Epilepsy Awareness Month

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November is Epilepsy Awareness Month and I apologize for not posting earlier. I really tried but found myself bored while reviewing the usual. All stuff we need to share, I'm sure, but I just wasn't feeling any of it. Struggling with my motivation and finding a topic to create awareness around, I sat down to write and decided to simply start where I'm at. Checking in I noticed I'm really, … [Read more...] about “Happy” Epilepsy Awareness Month

CBD Calculator App

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I love the moms in our group because we are the women who take matters into our own hands. We all get asked a lot of the same questions over and over again. How to dose is a big one.* Most of us start with the spreadsheet calculator shared by the Realm of Caring. Two years ago I used a scratch piece of paper shoved in a binder to do the math. My friend Olivia? She taught herself how to code and … [Read more...] about CBD Calculator App

Looking for it

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"You're looking for certainty," my son's neurologist reflected. I lowered by chin and raised my eyebrows with pursed lips. I've been Buddhish for over 20 years and work in the field of death and dying. I'm pretty sure I don't believe in certainty. And certainly not when it comes to epilepsy treatment. I saw this post on brilliant Elizabeth's blog a couple days after this appointment and made … [Read more...] about Looking for it

Antecdotal Epidiolex

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When Senator Gillebrand mentioned in The Senate Caucus on International Narcotics Control hearing about the current state of cannabis research being primarily in the hands of one pharmaceutical company, she was talking about GW Pharmaceutical. They've been working on marijuana based medicines in top "secret locations" at least since the mid nineties. Their highly anticipated CBD pharmaceutical … [Read more...] about Antecdotal Epidiolex

The Hearing

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I woke up multitasking Wednesday morning. While making the boys breakfast, I bounced back and forth between Facebook and my text messages. In that exact moment, The Senate Caucus on International Narcotics Control was wrapping up their hearing on research and the potential medicinal benefits of cannabidiol. Our community was reacting online. https://www.youtube.com/watch?v=UYOcDouVkG4 If you … [Read more...] about The Hearing

Our Lucky Sea Turtle Babies

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Despite wearing a helmet, my son's face was injured when it fell into the table at our first epilepsy support group meeting. Beth was the first person to reassure me. She has a crew of boys and 2 of them are the same ages as my 2 boys. Her son with epilepsy is the same age as my boy with epilepsy, and their intractable seizure disorders presented very similarly. At the time our kids were both … [Read more...] about Our Lucky Sea Turtle Babies

By The Graces Of The Goddess

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"Hello? Are you still there?" My phone has been dropping calls lately. The line remained flat until she came up for air with a shallow, pressured breath. She sobbed. My heart fell into the hard stone that was now my solar plexus. With a slow breath, I answered my own question, "I know, mama. I'm still here too." Still holding that line with you. The one that feels . . . so . . . thin . . . … [Read more...] about By The Graces Of The Goddess