"Good luck," were his parting words. "This will be the rest of your life," said the neurologist who performed our second opinion, offering the grim diagnosis of Doose Syndrome. I had no reason not to believe him. I'd already googled the hell out of "drop attacks" and knew. "But what about this video?" I naively countered, hoping he might watch it with me and get excited too. But he firmly shook … [Read more...] about The Best Luck
high cbd
How CA’s Recreational Use Impacts Medical Marijuana Patients
I tried not to take it personal when a friend in the cannabis industry chided me for not being more on top of how "The Medicinal and Adult-Use Cannabis Regulation and Safety Act" will impact my son, a pediatric patient in California. Sure I knew this was coming, but the state's website hadn't been updated yet. And since special needs parenting, working full-time, running a business and a household … [Read more...] about How CA’s Recreational Use Impacts Medical Marijuana Patients
Weeding Through The Research
Studies on pediatric Cannabis are rolling in and I want to put a handful on your radar and show you where you can find the rest. I'll try to spare you my analysis because I want you to come to your own conclusions. I don't believe in one size fits all. Some of us in our community may share the same diagnosis, but we don't share the same circumstances. You live in a different state, have different … [Read more...] about Weeding Through The Research
Status Update
I was suppose to be there to pick him up at 2 o'clock. Except the entire day was setting me up. A $13.47 errand took me to 3 different shops across town. When I got the call from the school at 10 past, I was certain it was just to reassure my son that I was on my way. Instead, it was that call. The worst call. "An 8 1/2 minute seizure on the playground at recess. The ambulance is on their way. He … [Read more...] about Status Update
CBD Calculator App
I love the moms in our group because we are the women who take matters into our own hands. We all get asked a lot of the same questions over and over again. How to dose is a big one.* Most of us start with the spreadsheet calculator shared by the Realm of Caring. Two years ago I used a scratch piece of paper shoved in a binder to do the math. My friend Olivia? She taught herself how to code and … [Read more...] about CBD Calculator App
Looking for it
"You're looking for certainty," my son's neurologist reflected. I lowered by chin and raised my eyebrows with pursed lips. I've been Buddhish for over 20 years and work in the field of death and dying. I'm pretty sure I don't believe in certainty. And certainly not when it comes to epilepsy treatment. I saw this post on brilliant Elizabeth's blog a couple days after this appointment and made … [Read more...] about Looking for it
Antecdotal Epidiolex
When Senator Gillebrand mentioned in The Senate Caucus on International Narcotics Control hearing about the current state of cannabis research being primarily in the hands of one pharmaceutical company, she was talking about GW Pharmaceutical. They've been working on marijuana based medicines in top "secret locations" at least since the mid nineties. Their highly anticipated CBD pharmaceutical … [Read more...] about Antecdotal Epidiolex
The Hearing
I woke up multitasking Wednesday morning. While making the boys breakfast, I bounced back and forth between Facebook and my text messages. In that exact moment, The Senate Caucus on International Narcotics Control was wrapping up their hearing on research and the potential medicinal benefits of cannabidiol. Our community was reacting online. https://www.youtube.com/watch?v=UYOcDouVkG4 If you … [Read more...] about The Hearing
Not Ordinary Gold
I've been wanting to write about safety and the value of lab testing for some time now and a couple of rattling recent events finally motivated me. First, my son has had a few breakthrough seizures. Since we did just happen to switch to a new batch of his high CBD oil, it felt prudent to get it tested. So I filled up a one milliliter syringe and brought it down to SD PharmLabs, our local San Diego … [Read more...] about Not Ordinary Gold
Aniatos and other rude words*
* My mom's been known to accuse me of talking like a truck driver. (Maybe even a tattoo shop owner?) So warning: this entry includes mild adult language. About eight weeks ago I found a curious word in an unexpected place. As quickly as it caught my eye, I googled aniatos and learned that it is the Greek word for "incurable, without remedy." I spent about a day wondering about my friend who … [Read more...] about Aniatos and other rude words*
