"Good luck," were his parting words. "This will be the rest of your life," said the neurologist who performed our second opinion, offering the grim diagnosis of Doose Syndrome. I had no reason not to believe him. I'd already googled the hell out of "drop attacks" and knew. "But what about this video?" I naively countered, hoping he might watch it with me and get excited too. But he firmly shook … [Read more...] about The Best Luck
epilepsy HOPE
Aiyana Kalealani We Love You
“Can God do anything mom?” It can be useful to answer a question with another question when you don’t have an answer, “Like what? What do you wonder if God can do, Oscar?” “A cartwheel. Can God do a cartwheel?” My 5 year old son wants to know. In fact, God can do a cartwheel. He’s doing one now. Head over heels, he’s taken the whole world with him. Round and round, up and over, finally co … [Read more...] about Aiyana Kalealani We Love You
Where To Find Pediatric Cannabis Support
"Diane, please note: Mother gives 7-year-old male patient THC oil to treat his seizure disorder." I'd never seen a doctor speak into a tape recorder before, but then I'd never seen this doctor. I fully expected Peggy Lipton to appear with her wide smile to offer me a damn fine cup of coffee and a slice of cherry pie. Trying not to roll my eyes, I corrected the new doctor who was covering for our … [Read more...] about Where To Find Pediatric Cannabis Support
Solid Gold: Tips From Dr. Bonni
The most commonly searched terms that get parents here are: "CBD", "Kids" and "Dosing". They're asking the internet because doctors certainly aren't telling them. Except as a social worker, I ethically can't tell you either. What I can do, however, is empower you with the tools and resources you need to figure it out yourself. I promise, once you get the hang of it, you will feel even stronger and … [Read more...] about Solid Gold: Tips From Dr. Bonni
Weeding Through The Research
Studies on pediatric Cannabis are rolling in and I want to put a handful on your radar and show you where you can find the rest. I'll try to spare you my analysis because I want you to come to your own conclusions. I don't believe in one size fits all. Some of us in our community may share the same diagnosis, but we don't share the same circumstances. You live in a different state, have different … [Read more...] about Weeding Through The Research
Status Update
I was suppose to be there to pick him up at 2 o'clock. Except the entire day was setting me up. A $13.47 errand took me to 3 different shops across town. When I got the call from the school at 10 past, I was certain it was just to reassure my son that I was on my way. Instead, it was that call. The worst call. "An 8 1/2 minute seizure on the playground at recess. The ambulance is on their way. He … [Read more...] about Status Update
